For the cost of a sheet op paper and some ink, an envelope and a stamp, or even cheaper, a few minutes typing on an email,
you can get the word out that the public at large is tired of a very serious disease being largely underfunded by our government for researching a cure. Cancer get many many million, as do many other diseases, but Lupus takes as many lives, and gives people a much lower quality of life than does cancer. And just so you know I have lost two very dear relatives to cancer, My grandfather dies in a979 from Brain cancer and my Uncle died last year from prostate cancer. here is my blog entry about that [ link ]
LUPUS, is so misunderstood and so very badly researched due to lack of federal funding that there just isn't the manpower to find the cure, I know it is out there, we just need to find it.
So I wish you each to write a few letters and send them to the representative in your area, he/she will be listed in the yellow pages. And if this wish earns any money at all, I will donate it to a good group to further this research and ask our government to revamp their funding policy to give Lupus a fighting chance.
Why$200, well let us just say I don't care for greed, and if we ask for 200, then that leaves 300 for 2nd place which may well allow this voting round to fulfill 2 wishes instead of 1 (more)
Comments
good luck
Good Idea
As someone who has been battling both Lupus and MS for 20 years ,I applaud your effort to educate people about the disease. These devastating diseases need a cure . It is time these Government Officals either get the funding for Lupus research or get their butts out of office. Most people I know have no idea what Lupus is or the toll it takes on the human body.Hope you get your wish,but even if you don't and make only one person aware of the disease and the needed research, you have done a great service, 5 stars,definitely 5!
Edited on: Apr 16, 2007 18:46 pm
you have my 5 stars. good luck
Great wish!
Great wish!
I recently found an article addressing Lupus AND Fibromyalgia paired together. According to this article, having both is a lot different than having just one of them. And both diseases are still SO underlooked and completely misunderstood. PLEASE everybody, educate yourselves about these diseases.
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My sister-in-law has lupus. Good luck to a good cause!
You get a 5 from me!! They need a wake up call, nevermind just letters!
Good luck, I gave you a 5 !!!!
good luck!
Got my "5" !!! Best of luck and God bless !!! I hope you all rally around this one too !!!
A coworker of mine died just last week of complications with her lupus...great cause!
Good cause!!! Good luck!
Here you go...
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and
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I have had a friend pass from Lupus, it can be extremely miserable for them sometimes.
Good Luck
I have sarcoidosis which is even rarer than Lupus and extremely underfunded as well. I email state representatives all the time to get them to acknowledge this disease and we have reps who go to Congress and NIH to appeal to them. Good luck on your wise.
As promised I am back to vote!! Best wishes and God Bless!!
I will be back to vote!
If you scroll down toward the bottom, Gail put in some very helpful links, I wish i could just copy and paste them, but it ain't workin for me.
What a wonderful wish Shane! You'll have my vote!!!!
This is a great idea and I will be back to vote on it.
Great plans like this one deserve to win! Awesome wish!
That is a very cool thing you want to do and very generous!!!! You deff have my vote!!!! I shall return!!! Good Luck and God Bless!!!!!
Great Wish!! I was diagnosed with systematic lupus when I was 15. Not too many people know what this disease is. It is so underrated! I will definatley be back to vote!! Again you are so sweet and kind!!
A noble cause!
Great wish Shane. My daughter is in the testing process because her docs think all of her problems are coming from Lupus.
You are right.... My niece was just told they think she has lupus...
On another note, were you able to get that saddle you needed?
you are right!
Awww
What a man!
Folks can even email thier Congress now, though I wonder in my head if an actual letter has more weight.
Here is some helpful info/links to contacting Congress:
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That's true about Lupus Shane !!! However, why not just say upfront a $200 donation to non-profit organization for Lupus ???
Thank you again, Shane !!! I'll be back with my "5" Stars !!! And, this is truly a great wish !!!
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