Wish
This wish has been granted!
Funds for my cancer clinical trial expenses
Dee Dee
Comments: 167
Amount: $400.00
Granted: $100.00
Views: 1101
Favorites: 10
I have one of those lovely incurable cancers.
Cut it out, back it comes again. There's only so much cutting you can do before it goes to your liver, and your lymph nodes. So, after almost 13 years, that's where we are. There are a few things that CAN be done to help.
There's a protocol being done in Rotterdam, the Netherlands. It costs $80,000, plus the hospital stay (another $9,000-12,000) the trip there, and 4 to 6 weeks expenses to stay there while they see if it worked...average cost to people that have done it is around $110,000. There's another one in Berne, Switzerland. Same sort of deal, average cost to those that have done it, closer to $150,00. Obviously, FAR out of my reach.
There is a recently opened third alternative. It is in Houston. It's at an outpatient facility, because the therapeutic radioactive agent they use doesn't damage the liver (Basel) or kidneys (Rotterdam). It's a 3 week stay, no hospital involved. Most people stay in an extended stay motel nearby and the expenses are for lodgings and food, plus the considerable (testing $8,000, infusion $25,000) medical expense. Well, this Stage II clinical trial--something Medicare NEVER covers is clinical trials--works well enough that Medicare will cover it at 80%. I have Medicaid that will pay the other 20%.
I can 'borrow' a place to stay, either 30 miles away at my foster son's or possibly 10 miles away at a friend's "in town apartment" for when she's at the cancer hospital. I need funds for food, gasoline and to pay the radiation safety fees to 'clear' the place I stay once I get to go home. I'll be unsafe for others to be within 6 feet of for a few days, and unsafe around babies, small animals and pregnant women for about 10 days. It's a chance to 'buy' a few years, and it can be repeated, up to three infusions. It'll lessen my dependence on the injections I currently get. Medicare will save money on that and I will have some time where I feel better!
So, RHF, I am starting now so that by January, I can have some money saved, and since I won't win, I can at least say I tried to get some RHF help. It's also a way to get more wishes done, and that's good too! (Why naughty? I'll die with or without it, just not as soon.) (more)
Comments
CONGRATULATIONS Dee Dee
Heres my 5 Dee. Thanks for being the type of person that you are.
You said you needed money for transportation to doctors,etc. The government pays for transportation if you are really a sick person. That is why you see those vans that pick up paitents to and from the hospital and doctor's offices. Check into that....call any hospital and they will be able to direct you. You asked for money for transportation. that is plan wrong!!!!!
And you're being extremely negative for someone who obviously NEEDS the information I tried to share with you. Don't be that way, it makes you look bad.
The government will pay for transportation to doctor's appointments.
Texas Medicaid DOES NOT provide equal services for Medicare/Medicaid beneficiaries. Just as I don't know Florida Medicaid, YOU don't know Texas Medicaid. I DO however, know FEDERAL Medicare, and it's 80% payment. Your hate is showing. You need help.
Thank you, everyone.
I've made my request for January, and hope to be able to access a computer while I am there!! I appreciate your votes, your prayers and your support.
heres my 5 good luck
:) (((hugs)))
this just breaks my heart. ill be praying for you!
Dee Dee, I am so happy you are going to get this girl! Congrats!
Good luck
Good luck and God Speed!
good luck!!
5*****
Your in my prayers
I will keep you in my prayers. My son has Leukemia, and I understand all the stresses of this sort of illness. I have seen many miracles happer in the way of protocols. I truly hope and pray that you get what you need. Also, could you please take a look at my wish.
I am praying for you and I do hope you get all the money real soon for the meds. God bless.
I just lost my father yesterday (08/05) to cancer. As it looks like you will win this week, I pray that this treatment will give you freedom from pain and suffering, as well as allow you to have quality days, not just more days. Please try to keep us informed as to how things work for you.
i gave you my 5 star rating please do the same for me 2moro
You defenitly have my 5!
i hope u win
Hope my 5 helps :)
I hope that everything goes well for you and that God adds several years to your life.
Here Is My 5. The best Of Luck To You. Keep Your head Up And Always Remember No Matter What. God Is Great!!!!!
Dee Dee, Thanks for who you are, and all you do. Thinking of you, and lifting you up in prayer. I left you a link on the thread bout pizza, in case you can take the product. If you can't find it, let me know - would love for you to be able to eat whatever you want. Looking forward to seeing you soon. Hugs, Lisa
Gave you 5, Good luck! :)
I give you my 5 i didnt know that by doing less then 5 it was evil..for people did it to me!!!! I am sorry please forgive me!!!!
This is a forgiving bunch, but try to fix thinks, OK? And think about limiting the number of wishes to keep from diluting your vote. One nice, one naughty and maybe a 'dollar wish' per week is easier for voters to deal with, and they don't think they've seet it before.
Good luck to you. I truly with you the best.
Sincerely,
D.K.
I wish the best of luck for you and even more so cuz my daughter is going through cancer and i know it's tough. Keep strong!
you have my ^3....Wish you well, I will give you the rest when you you please look at my wishes for my family and I ????
Then again, you have not even voted on my wish...so maybe it bothered your minimal conscience to lie about voting a 3 and vote a 1 like you did other people?? AS of 5:45 Central time Sunday afternoon you've not voted for or against me, and I would rather you didn't. thanks for being a shining example of WHY we need transparency in how people vote.
-------------
OK, thank you for attempting to correct all the misvotes and problems.
Edited on: Aug 5, 2007 23:46 pm
Dee I know I commented before but i really wanted to say that you are a wonderful person and I really admire you. Your a very kind woman and I hope that someday I may be a little more like you. I wish I could take all the pain your going through away. I pray for you and others every night because alot of you have touched my heart. Don't give up Dee! Fight along side me.
good luck with this wish, and you have my prayers as well as five stars:)
good Luck..BLESSINGS
here are my votes. can you vote for mine
Edited on: Aug 5, 2007 09:08 am
hope your wish comes true.
I always vote for sock puppets!
}; )
hope u get this wish
good luck plz vote for me
You ROCK, Dee Dee! FIVE to keep this dream ALIVE! :)
Edited on: Aug 4, 2007 13:41 pm
Like the remark says, you should totally win. *Totally*.
Here's my five stars, fingers crossed and both thumbs held (Swedish equivalent of crossing fingers). I really do hope you win.
GOOD LUCK!! You have my 5 & prayers!
Dee Dee, I hope the links I put in waaayy down below, can be of help in raising more funds for your during this treatment !!! I think if you put up pages now, you will most DEFINITELY have the expense money you need -before- January !!!
I remember way back when ~ LOL ~ and I had to pay for my expenses too during an experimental trial [finances were better then] !!! (-;
Although we don't have the opportunity to 'banter' in The Forum' because of the 'glitch' in my screen name ~ I 'do' want to say ~ I cannot imagine a wold without you in it !!!
SO, with 'that' being said ~ I will continue to pray for your complete and total healing ~ as I believe God can give that to you !!!
May you and Dan have a wonderful weekend together !!!
Sending you love, prayers, and ~
*GREAT BIG HUGS*
Dee and "The Bandit" too >^.^< [he sends y'all kitty kisses] May God bless !!!
Dee Dee, Just thinking of you today! Hope you and Dan are having a good weekend.
I really wish you could get some donations along with winning this wish because your need is much greater than the 100.00 and you always are doing for someone else. This wish should have thousands of points because it is so very worthy. God bless you Dee Dee and the kids and I are praying for you.
5 for your wishes. Prayers & Blessings for you.
Praying for you!!! You got my 5 for sure!!!
Thanks so much for going to CDBaby.com and putting in a review for my Red Rose CD! Here's 5 for you! RandyApple [ link ]
I am deeply sadden and my heart and prays are with you and your family.
oh WOW. I don't think I have ever wanted anyone to win more than you. My mom has an incurable cancer, unfortunately she is not strong enough for radiation or even surgery so it's just hurry up and wait for her.
I gave you a 5, would give you 105 if I could.
Good luck to you.
You have my 5!! Good Luck!!
you have my 5 and with God all things are possible. I am a cancer survivor, and I am here to tell you that prayer healed me. People prayed for me and it was gone when they operated on me to remove it. The Doctor could not explain it and was shocked to the core when he saw what had happened. They told me before surgery I would lose my leg and or it had spread already and that I would eventually lose my life to it. I express this to you out of love nothing less. God will do what you need done ......... God is............SO BELIEVE!
good luck Dee Dee you truly deserve to win this!
u have my 5
Dear Me, I just gave you 5 stars. Don't be TOO cocky, though...you're still a smart-alec with a really bad silly streak. Don't make me change it!!
Love, Me
got my five
good luck
Good luck and God Bless
I hope you win this... very deserving. Weither you live an extra 10 days or 10 years doesn't matter, enjoy life!
God Be with you
Good luck. I know all to well how hard cancer can be. 5 stars for you!
Good luck![5]!Never give up!
I gave you 5 stars and pray God will help to heal you.
We need to break records with this wish. Let us see what we can do to get this wish in the record vote hall of fame. I know it deserves to be on top several weeks in a row to get her money. This is so important. I wish I could donate myself as usual broke with a big heart lol God bless you Dee Dee.
You got my five, and my prayers. God Bless you
You go girl!
Good Luck! you have my 5! Please check out my wish when you have time!
dee dee here is 5 you have been through alot and you have done your home work good luck
Dee Dee, I'm here with my 5 stars for ya!! Hope you get ALL the assistance you need with this, and things WILL work out. BTW, what's your fave hot beverage?
(Hot chocolate, then tea. Never learned to drink coffee at all, not even toy coffee stuff wist all the cream, sugar and flavorings.)
Heres you 5 stars good luck.
Cancer sucks. I wish nothing but the best for you.
Here is a five stars for u and I appreciate u read mine add a comment and vote for them.
Good luck and god bless. Check out my wish if you have time.
You've got my 5. God Bless You.
good luck
here's my 5 Dee Dee!!!! and I wish you well with the treatment, the trip and this wish my friend!!!!!
God bless............
Here is my 5 for a very deserving wish. Would you please take a moment to check out my wish for me and my children? Thank you so much.
5 stars to you. Good luck and God bless.
[ link ]
[ link ]
[ link ]
[ link ]
[ link ]
[ link ]
Best of luck to you
you have my 5 check out my wishes
Good luck. You'll be in my prayers.
Good luck, please vote on my wish...
5 stars! Good luck!
I sure hope you get your wish!
Good luck!!
GOOD LUCK WITH YOUR WISH AND I AM SORRY THAT YOU ARE FACING SUCH A CHALLENGE .. HOPE YOU GET SOME HELP
Good luck and many blessings towards your wish !
Wish I could give you more than just 5 stars, but I can't. You are a remarkable woman and I know this will all work out for the best for you!
I can't imagine knowing there is a treatment out there but it being financially out of reach and your insurance not covering it. What a sad state of affairs this country has. I am praying for you and that you get into this program and can make it all work. I will pray for the cancer to not return. Good luck and God bless!
I cannot tell you how much I feel for you. My grandma had cancer, and it got in her liver as well. I'll be praying for a miracle for you. I hope you get your wish. Every little bit helps. :)
bless you DEE DEE . i will keep you in my prayers love kelly
good luck
DEE DEE here is my 5,i wish i could give more,will keep you in my prayers,GOD BLESS!
Praying for a CURE!! Trust in the Lord for he is the Mighty Physician and ther is nothing impossible for him. I pray that you will be able to recieve this treatment and when get your wish!
Go to [ link ] his story is very encouraging!
GOOD LUCK!!
Here is my 5! Good luck to you! Could you please come check out my wish for my son?
[ link ]
Here is my 5!! I totally hope that you get your wish.
Please stop and check out my wish for my baby if you can. I would really appreciate it.
God Bless you
God Bless you i hope you feelo better soon
I came on just to give "devilish Deedee" some love! And of course 5 stars. I don't pray DD, but I def will send you good thoughts.
Good luck, here's my 5
Good luck!
wishing you the best will keep you in my prayers
A more than worthy wish! God Bless you! I wish I could give you a miracle, but the 5 is the best I can do.
WWWOOOHHHOO!! I got ya over 400 Dee Dee!! Hope things get better for ya soon!!
Thinking of you Dee. Of course you have our 5, I just wish it could be so much more. Your in our thoughts. Take Care. Keep the faith and keep the wishes coming.
-Sherri
definite 5 i wish i could give you more dont give up and well im assuming you picked the video because of the song but my chemical romance has amazing music and well i have been through a lot in my family and myself and their music always helps me during the rough times :]
Edited on: Aug 1, 2007 19:09 pm
I gave you all five stars -- here's hoping you get your wish soon.
You have no idea how much I wish I could vote on this wish 50 times over. DeeDee I love ya and you make me smile. You have my five for this one. PS I love Evil DD too!
You know you have my support!
I would not even want to compete with your wish. You def are such a really kind hearted person who would help anyone with your last dollar. I know this is a wish that needs to make it to the top.
Definately got my 5*****'s You are a strong, funny, kind, tell-it-like-it-is woman..I admire you so much! I wish you all the best!!...............Tracy
5 stars and hope you get your wish xxx
5 Stars. I wish it could be 10 times that amount of stars to help you out. I hate our medical system especially in times of literal crisis.
I hope you get it
Dee Dee you definately have my 5 stars. I wish I had the money you need because it sure would be yours in a heartbeat. Can you please send my your snail address, and I'll send what I can. Thanks
god bless
You got my 5. I hope you win!
I don't have Paypal...had a bad experience with them, and canceled the account. Now they want my Mom's credit card to re-open it?? (My bro used her CC to pay for something on eBay that he bought with my account.) So, sorry, no Paypal available. They scare me with their demands...
You have my five and I really hope that everything goes well for you and that you win this fight!
you have my5 also my heart i really dont know what to say or what i should say for the first time in life i am completely at a lose of somthing to say i am not taken back so much that i cant tell you that i think that you have be one of if not the bravest person i have ever heard of there are things that i should try to say but all i cvan get in my head is WHERE -WHERE HAVE YOU GOTTEN YOUR STRENTH FROM you have to be put in the cadigory as one of my heros you you are awesome good luck and please done give up
Hope this will not be too little.
I'll keep you in my prayers. You certainly have my votes
This is a naughty wish for me also. You are a nice holiday for me after a shift at the mine. (Did you know that you are quite an opinionated character.)
I hope this wish comes true for you.....It would amazing if you went and it worked.
YOU GOT MY 5 PLEASE VOTE ON MY WISH THANKS GOD BLESS
heres my 5 Dee Dee, and should you ever need a fuzzy pair of handcuffs let me know...I'll try and scare some up for ya okay?
love you DEE
If this was a true clinical study, it would be paid for in it's entirety by NHIC. I would check with them and see what their protocol is. I haven't heard of any trials that had to be paid for out of pocket. I hope that this is a true clinical trial and not something that someone is trying to rip you off for!!!!! I hope that you are able to get your wish granted.
Edited on: Aug 1, 2007 19:50 pm
And...
[ link ]
THEY seem to think it's a clinical trial.
Also, see Question 11 in this link.
[ link ]
Cancer trial, and there are hundreds of thousands of them are NOT all covered. That's such wishful thinking it's ridiculous.
Info about the trial:
[ link ]
Any more questions??
The following is copied from an application I made to participate in a clinical study that I took part in for Interferon-B in an MS treatment trial.
"Usual or standard of care costs, such as doctor visits, hospital stays, clinical laboratory tests, x-rays and so on, which occur whether you are part of a trial or receiving standard treatment. These costs are normally covered by insurance, if you have it, or by you, if you don't.
Extra care or study-related costs associated with trial participation, such as additional tests that may not be fully covered by the trial sponsor or research institution"
Its an honest misunderstanding cause the whole thing is rather confusing having dealt with them myself, some are fully paid for some arent. Your point about being careful who your dealing with in clinical trials is well taken though, there are some medical frauds not above scaming those sick with cancer.
Sounds like shes researched it though and its legit, but not one of those paid for by NIH.
I didnt see anything accusatory in her post, she was just saying make sure its legit cause MANY-but not all-clinical trials are fully funded by NIH.
Anyway its a great wish and you have my 5! good luck!
WOW!!
I'm amazed!! I've got my Kitty Bank (no piggy banks here, I feed my Kitty) set up and she gets all my change, so there's a tiny 'fund' already. If this wins, I can get the paperwork started and reserve my January slot!! I've held off until I have at least $150 in hand, so that I know I'll have the money. I'm...amazed!
Thanks, all!
U GOT MY 5, I WILL KEEP U IN MY PRAYER'S....
You got my Vote, Good Luck
Dee Dee,
This is one of those wishes that shoots straight for my old heart. I pledge that on Dec 3rd I will send you a check to help with these expenses. Cannot imagine a world without you in it. Check your email please :). If y'all can just save your change til Dec. and send it , no doubt we can raise the $400.
- That just about sums up my own thoughts!!!
You have my prayers and my 5. I am all about research for cancer, I just lost my grandmother (my best friend in the world) in January, they found it on Jan 1st of 2007 and by Jan. 12 2007 she was gone. Anything that I can to do help the cause!!
You have my 5!
you almost lost me when you said you wont win, because I didnt like the poor me I dont win my wishes attitude you "briefly" showed...BUT this is one of the most deserving wishes I have seen and Dee Dee - I really hope you do win. AND I hope you go and a miracle happens.
This one needs to go to the top. you have my 5 good luck and prayers too (((hugs)))
Good luck lovely Dee Dee!! Stay strong! (And please include your paypal addy in the wish!!)
5 for the cause - prayers for a life that goes on to a natural ending
Here's my five
Prayers are with you Dee Dee, you've got my 5!
~~Good Luck Dee Dee!! Here is my FIVE!!~~
You sound very courageous and strong - you have my five. Hope you win!
Good luck
Here is 5 for ya Dee Dee!!!
Is there anyone here at RHF who has any PULL with the press that could get them involved in this, or possibly create a website to promote this cause? I can't imagine a world without Dee Dee in it, and don't even want to think of it. Let's do all we can to help get this wish to the top!
you are a strong person for facing this. I wish I could help.
I will be back when voting starts. This wish has to go to the top. Your in my prayers Dee and where there's faith doors will open. (((hugs)))
I'm so sorry to hear this, Dee Dee. I'll be back with my 5 stars and if I am able to earn any money in my PayPal from doing my surveys, I would be glad to make a donation. Please include your PayPal address!
Dee Dee please think of adding you PayPal account to this wish, so people can Donate to you, and help out with these expenses !!! You ARE in my thoughts and prayers !!!
I am not very knowledgeable about these sites [in so far as having personal experience]; however, how about setting up a page at: [ link ] ; [ link ] ; [ link ] ; and Kels sent me a couple links to new ones [to me]: [ link ] ; and, [ link ] !!!
I am praying Dee Dee if you set up pages on a few or even ALL of these; plus here; you will most definitely reach your goal of $400 by January !!!
Sending you Lots of Love and *GREAT BIG HUGS*
Dee and "The Bandit" >^.^< God bless you and your family !!!
Edited on: Jul 30, 2007 04:26 am
I'll be back with my 5! We need to find some other sites to post it on, too. Let's put on our thinking caps, y'all, and please post any possible sites Dee Dee can list this type of request on here in the comments section! Thanks :)